In Episode 18 of AcroTales we speak to Jill from from Oaklahoma in the USA. Jill was diagnosed with Acromegaly in 2005 and it was quite a struggle for her to get a diagnosis. Jill is shining example of turning a negative into a positive. For over ten years Jill has been at the helm of the Acromegaly Community, finding herself thrust into a world of medics, big pharma and advocacy. We chat about her complex diagnosis, the role of being an advocate and the changes she’s seen over the years.
January 25, 2024 @ 8:17 pm
Thank for the helpful AcroTales with Jill Sisco, her story hits home with so many of us Acromegaly patients. Thank you both for everything you do!
August 6, 2024 @ 10:51 am
Thanks for the kind words Michelle!
February 3, 2024 @ 2:31 am
Thank you for showcasing Jill. She has helped so many through this journey. When mine began she was so helpful and supportive. You would never imagine she has such a full plate with the help she gives. Thank you both for this wonderful podcast.
August 6, 2024 @ 10:51 am
Thanks Tanya – I know, hard to believe!
August 5, 2024 @ 10:58 pm
Can so empathise with the recurring late diagnoses for so many pituitary patients. Took 50 years to get an MRI which detected my prolactinoma. Very grateful to the Dr who took blood tests which found raised prolactin levels which had made me so ill. He sent me back to the hospital which had sent me to him as a physchiatric patient but whom he saw as atypical and not mentally but physically very unwell. I owe him so much.
August 6, 2024 @ 10:52 am
Thanks for sharing, Pamela.