What are common signs of Acromegaly?
Change in facial appearance
Issues with vision
Enlarged hands and feet
Lack of sex drive
Oily skin and sweating
If these symptoms sound familiar and you’re noticing changes in your health and appearance, contact The Pituitary Foundation or speak to your health specialist.
So why AcroTales?
The idea for AcroTales came about after a project co-ordinated by Dan Jeffries, Tessa Murdoch and Trinity Barnes to raise awareness on Acromegaly Awareness Day (November 1st).
The aim of the project was to create a collection of short video clips submitted by people living with Acromegaly. Each person was asked was asked to start their message with the words “Acromegaly has…”. The message could be insightful, informative and supportive.
After some great feedback, Dan decided to take this one step further and extend the concept to ‘AcroTales’ – a platform for acromegalics to tell their story in full and at their own pace.
Dan Jeffries Patient Advocate
Hi! My name’s Dan Jeffries and I’m the ‘other voice’ that you’ll hear when you listen to an AcroTale.
I was diagnosed with Acromegaly in 2007 after a chance encounter with some medical students who were taking their final year exams. They were tasked to diagnosed my other rare condition – Wyburn-Mason syndrome – but instead commented on my ‘very large hands, protruding jaw and exposed forehead – which could be caused by an excessive release of growth hormones’. At the end of the exam I asked the consultant ‘what were they talking about?’ and he advised me to see a doctor – I might have something called ‘Acromegaly’.
A few years on and I am in remission and enjoying life. I write music and like to be creative. I am also a Volunteer Ambassador for The Pituitary Foundation, a trustee of Medics 4 Rare Diseases, organise a yearly ‘meetup’ for acromegalics, and now really excited to be producing AcroTales. In 2015 I published my memoir, Me, Myself & Eye.